OUR STORIES

PHACE Syndrome Community is united by our desire to find a cause and cure for this condition. Below are a few individual journeys of some of the families facing PHACE.

Link to Children's Healthcare of Atlanta write-up

Rachel's story

 

Blogs/Personal Websites

 

Angel PHACE 

Little Louise

Mighty Quinn

Hanah-1.jpg
image2.jpeg

Kennedi's 

Story

Terms of Use and Privacy Policy      |     © 2013 -  2019 PHACE Syndrome Community