OUR STORIES

PHACE Syndrome Community is united by our desire to find a cause and cure for this condition. Below are a few individual journeys of some of the families facing PHACE.

Share your story! 

 

Send the PSC a 500-1,000 word story along with 3 or 4 pictures. 

Natalia%20Alcantara1%20(2)_edited.jpg
Hanah-1.jpg
image2.jpeg
Kennedi's 
Story

Link to Children's Healthcare of Atlanta write-up

Rachel's story

 

Blogs/Personal Websites

 

Angel PHACE 

Little Louise

Mighty Quinn