Attending a PHACE-to-PHACE virtual meeting is a chance to learn more about PHACE syndrome, and the topics which families, just like you, are interested in learning more about, or discussing in person with other families and individuals.
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Each meeting is one hour in length, and is held through Zoom.
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Pre-registration is required. The Zoom meeting link will be sent after registration is complete.
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The meetings are free to attend.
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The PHACE Syndrome Community is always interested in hearing your topic ideas. Please email your ideas to info@phacesyndromecommunity.org
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Virtual Monthly Meet-ups
Parent Meet-up
Zoom meetings will be held on the fourth Tuesday of the month
Time: 8:00 - 9:00 pm eastern time
Meet other parents of children with a PHACE/S syndrome diagnosis, and share your knowledge, or be supportive to a new parent navigating through their child’s diagnosis.
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