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Attending a PHACE-to-PHACE virtual meeting is a chance to learn more about PHACE syndrome, and the topics which families, just like you, are interested in learning more about, or discussing in person with other families and individuals. 

Each meeting is one hour in length, and is held through Zoom. 

Pre-registration is required. The Zoom meeting link will be sent after registration is complete.

The meetings are free to attend. 

The PHACE Syndrome Community is always interested in hearing your topic ideas. Please email your ideas to

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Virtual Monthly Meet-ups


Parent Meet-up

Zoom meetings will be held on the fourth Tuesday of the month

Time: 8:00 - 9:00 pm eastern time

Meet other parents of children with a PHACE/S syndrome diagnosis, and share your knowledge, or be supportive to a new parent navigating through their child’s diagnosis.

Register here for the series

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