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Attending a PHACE-to-PHACE virtual meeting is a chance to learn more about PHACE syndrome, and the topics which families, just like you, are interested in learning more about, or discussing in person with other families and individuals. 

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Each meeting is one hour in length, and is held through Zoom. 

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Pre-registration is required. The Zoom meeting link will be sent after registration is complete.

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The meetings are free to attend. 

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The PHACE Syndrome Community is always interested in hearing your topic ideas. Please email your ideas to info@phacesyndromecommunity.org

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Virtual Monthly Meet-ups

 

Parent Meet-up

Zoom meetings will be held on the fourth Tuesday of the month

Time: 8:00 - 9:00 pm eastern time

Meet other parents of children with a PHACE/S syndrome diagnosis, and share your knowledge, or be supportive to a new parent navigating through their child’s diagnosis.

Register here for the series

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