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Join other community members for the 11th annual

Race for PHACE.

September 7-15, 2024

The Race for PHACE started in 2013 by families in Pittsburgh, PA and has raised over $130,000! We continue this fundraising event, and look forward to more families, across the country, hosting a walk or run. 


Families across the country can organize teams of friends and family to walk or run. Past events have been races through a timed course, a walk through a park or neighborhood, or even individuals getting sponsors and running on their own! Hosting a virtual event, and asking friends and family from near and far to walk or run with you on a certain day, is another great way to host a Race for PHACE.


All the different ways an event is organized, creates awareness for PHACE syndrome while supporting the programs of the PHACE Syndrome Community. 

Will you create a team for the 2024 Race for PHACE?

Watch Jeannie talk about her passion for the Race for PHACE! 

The 11th Annual Race for PHACE Walk and Run 

You can organize in your own neighborhood, set-up a live race, or encourage friends and family to participate through a virtual can decide!


Set your course, your pace, and even your distance.

Participate alone, or ask your family and friends to join you in person or virtually. Read more about how to plan for your event.


What is a virtual race and walk? 

Rather than meeting in a physical location, with other event participants, a virtual race or walk is an event where you participate in your location while friends and family are at their remote locations. 


When is the Race for PHACE held?

The Race for PHACE will be held during the week of September 7-15, 2024. We encourage you to host your Race for PHACE event during the designated week, or plan your event during a time that works best for you and your family and friends.

How do I become a team captain, and host an event?

To become a team captain, use this form to register your team, and plan to attend the team captain's meeting on May 28th. Once your team is registered, you can start to promote your event. Registration for all team members and individuals wanting to participate will begin on June 1, 2024. 

Can I register my entire team members to participate in the Race for PHACE?

Yes! Create a team with your friends, family and coworkers, and fundraise together! Registration opens on June 1, 2024. 

Can I register under a specific team name?

Beginning June 1, 2024, the registration form will contain a dropdown box with all registered teams. Only teams that have been registered will be included in the dropdown. If you don't see the team you want to join, contact the team captain. Registration and payment will be accepted beginning June 1, 2024.  

Is there a minimum fundraising requirement?

There is no minimum fundraising requirement. Each participant is asked to register, and there is a registration fee of $30 for an adult, and $15 for a child.

Is the registration fee?

$30.00 pp for adults

$15.00 pp for children 12 and under

Become a Race for PHACE Sponsor

A sponsor of this year's event helps the PSC support more families; make your sponsorship using this link.

Platinum level $250

Gold level $100

Silver level $50

Want to make a donation, but don't want to register to run or walk? 

If you are making a donation on behalf of a specific team, use the dropdown box to chose your team.

Fill in your contact information and address.

Make a donation here

Share and post your event.

Use #RaceforPHACE to share the event on social media

Email pictures and video to


Does your company match your donations?

Contact Moureen at to learn more about company sponsorship and matching gifts for the Race for PHACE


Contact Moureen at

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