NEWS

February 28, 2021

#ShowYourStripes

 

Rare Disease Day Is Just 10 Days Away! Don't Miss Behind the Mystery: Rare and Genetic, Airing on Lifetime's The Balancing Act on February 24

 

Get ready to #ShowYourStripes and tune in to Lifetime on February 24 at 7:30am ET for a very special edition of Behind The Mystery!

 

In partnership with the National Organization for Rare Disorders (NORD) and WEGO Health, Lifetime's The Balancing Act will present a special Rare Disease Day segment of Behind the Mystery: Rare and Genetic, its recurring rare disease series.

“Rare at Heart: What Makes Us Tick" will feature information on Rare Disease Day and how to "Show Your Stripes" from NORD's Director of Strategic Planning, Lisa Sarfaty, and moving stories of living with rare disease from three patient influencers: William Yank, Travis Flores and Kelly Barendt.

 

About Behind the Mystery

 

Behind the Mystery: Rare and Genetic is a recurring rare disease series on the award-winning morning show The Balancing Act, airing on Lifetime Television. It highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases, clarifying often-complex issues by offering easy-to-understand explanations from top experts in the field.  

 

What is Rare Disease Day?

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

As part of the PHACE community, you have an understanding of the challenges living with a rare syndrome. This event brings all rare communities together, to unite, and raise awareness for the 300 million people living with rare disease around the world and their families and carers.

Learn more about Rare Disease Day

 

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