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Medical Advisory Board

Dr. Beth Drolet, Chair of the PHACE Syndrome Community Medical Advistory Board, at a PHACE Conference.

Medical Advisory Board

The PHACE Medical Advisory Board provides guidance and medical leadership to our community on relevant issues regarding medical care and research of patients with PHACE Syndrome. This board, comprised of respected medical professionals, provides guidance on standards of care for patients with PHACE Syndrome, advocates for clinical research, promotes education of the medical community, and assists with development of educational information for families affected by PHACE Syndrome.


  • Beth Drolet, MD, Chair of the Department of Dermatology at the University of Wisconsin School of Medicine and Public Health
    *Dr. Drolet, Chair of the PSC Medical Advisory Board.


  • Denise Adams, MD, is a pediatric hematologist-oncologist and Director of the Comprehensive Vascular Anomalies Program (CVAP) at Children's Hospital of Philadelphia.  

  • Christine Fox, MD, Pediatric Stroke Neurologist at UCSF's Department of Neurology at UCSF Benioff Children's Hospital San Francisco's Pediatric Brain Center, Board Certified in both Vascular Neurology and Neurology, with added qualifications in Child Neurology

  • Ilona J. Frieden, MD, Professor of Dermatology and Pediatrics, University of California San Francisco

  • Heather Fullerton, MD, Chief of Child Neurology at UCSF's Department of Neurology at UCSF Benioff Children's Hospital San Francisco' Pediatric Brain Center, and Director of its Pediatric Brain Center

  • Maria Garzon, MD, Professor of Dermatology and Pediatrics, Columbia University Medical Center

  • Christopher P. Hess, MD, PhD, Associate Professor & Associate Chair, Radiology & Biomedical Imaging, University of California San Francisco

  • Darren Orbach, MD, PhD, Co-Director, Cerebrovascular Surgery and Interventions Center, Division Chief, Interventional & Neurointerventional Radiology, Boston Children’s Hospital / Harvard Medical School 

  • Elena Pope, MSc, FRCPC, Dept of Pediatric Dermatology, The Hospital for Sick Children,  University of Toronto

  • Dawn Siegel, MD, Department of Dermatology, Lucile Packard Children's Hospital (LPCH) at Stanford and Stanford Hospital and Clinics (SHC)

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