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Centers | Other Physicians | Associations | Forms | Personal Stories

 

 

Centers - Vascular Anomalies Programs and Physicians affiliated with the PHACE Syndrome Community Medical Advisory Board

Children's Hospital of Wisconsin - Birthmarks & Vascular Anomalies Center
Location:
Milwaukee, WI

Website: http://www.chw.org/medical-care/birthmarks-and-vascular-anomalies-center/   

Physician on the PHACE Syndrome Community Medical Advisory Board: 

  • Beth Drolet, MD, Chair of the Department of Dermatology at the University of Wisconsin School of Medicine and Public Health

  • Dawn Siegel, MD, Department of Dermatology

Boston Children’s Hospital  - Vascular Anomalies Center
Location:
Boston, Massachusetts

Website:  http://www.childrenshospital.org/centers-and-services/vascular-anomalies-center-program

Physicians on the PHACE Syndrome Community Medical Advisory Board

  • Denise Adams, MD, Co-Director of the Vascular Anomalies Center (VAC) and Member of faculty at Harvard Medical School

  • Darren Orbach, MD, PhD, Co-Director, Cerebrovascular Surgery and Interventions Center, Division Chief, Interventional & Neurointerventional Radiology, Boston Children’s Hospital/Harvard Medical School

 

University of California San FranciscoBirthmarks & Vascular Anomalies Center and Benioff Children’s Hospital - Pediatric Brain Center

Location: San Francisco, CA

Website: https://www.ucsfhealth.org/clinics/birthmarks-and-vascular-anomalies-center and https://www.ucsfbenioffchildrens.org/clinics/pediatric_brain_center/

Physicians on the PHACE Syndrome Community Medical Advisory Board

  • Ilona J. Frieden, MD, Professor of Dermatology and Pediatrics, University of California San Francisco

  • Christine Fox, MD, Pediatric Stroke Neurologist, Board Certified in both Vascular Neurology and Neurology, with added qualifications in Child Neurology 

  • Heather Fullerton, MD, Chief of Child Neurology at UCSF's Department of Neurology, and director of Pediatric Brain Center at UCSF Benioff Children’s Hospital

  • Christopher P. Hess, MD, PhD, Associate Professor & Associate Chair, Radiology & Biomedical Imaging, University of California San Francisco

 

Columbia University Medical Center – Vascular Anomalies Clinic

Location: New York, NY

Website: http://dermatology.columbia.edu/clinical/pediatric_dermatology.html

Physician on the PHACE Syndrome Community Medical Advisory Board

  • Maria Garzon, MD, Professor of Dermatology and Pediatrics, Columbia University Medical Center

The Hospital for Sick Children / University of Toronto
Location: Toronto, Canada

Website: http://www.sickkids.ca/Dermatology/What-we-do/index.html#Vascular%20Tumour%20Service

Physician on the PHACE Syndrome Community Medical Advisory Board

  • Elena Pope, MD, MSc, FRCPC, Dept of Paediatric Dermatology, The Hospital for Sick Children, University of Toronto

Other Vascular Anomalies Programs and Physicians

University of Wisconsin's Department of Dermatology

Location: Madison, WI

Website: https://dermatology.wisc.edu/

Physician: Dr. Beth Drolet

Children’s Healthcare of Atlanta – Vascular Anomalies Clinic

Location: Atlanta, GA

Website: https://www.choa.org/medical-services/surgery/vascular-anomalies-clinic

 

Riley Hospital for Children at IU Health – Vascular Anomalies Program

Location: Indianapolis, IN

Website: https://www.rileychildrens.org/departments/vascular-anomalies-program

Physician: Anita Haggstrom, MD

Texas Children's Hospital

Location: Houston, TX

Website: http://www.texaschildrens.org/Locate/Departments-and-Services/Dermatology/Research/

                 https://www.texaschildrens.org/find-a-doctor/denise-w-metry-md

Physician: Denise Metry, MD

Cincinnatti Childrens Hospital and Medical Center

Location: Cincinnati, OH

Website: https://www.cincinnatichildrens.org/service/h/hemangioma

Associations

 

 

 

Forms

 

Managing and keeping track of all the appointments, procedures, medications and other vital information can be overwhelming. We highly recommend getting a binder and documenting the various aspect of your child's medical care. Below are a list of forms from Children's Wisconsin Hospital that they were kind in letting us share with all our families.

 

 

 

 

Blogs/Personal Journeys

 
 
 
 
 

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