Associations

 

• PHACES Foundation of Canada (our Canadian counterpart)
  http://www.phacesfoundation.ca/
   

• Hemangioma Investigator Group
  http://hemangiomaeducation.org/
   

• Pediatric Dermatology Research Alliance
  http://pedraresearch.org/
   

• NOVA (National Organization of Vascular Anomalies)
  www.novanews.org
   

• The Vascular Birthmarks Foundation
  http://www.birthmark.org

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Forms

 

Managing and keeping track of all the appointments, procedures, medications and other vital information can be overwhelming. We highly recommend getting a binder and documenting the various aspect of your child's medical care. Below are a list of forms from Children's Wisconsin Hospital that they were kind in letting us share with all our families.

 

•  Appointment Tracking

•  Bill Tracking

•  Calendar

•  Equipment & Supplies

•  Family Information

•  Family Support

•  General Information

•  Health Care Providers

•  Hospital Tracking

•  Immunizations

•  Insurance Information

•  Lab Tests

•  Medical Tests

•  Medicines

•  Procedures & Surgeries

•  Questions & Notes

•  Resource List

•  School Information

​

 

Blogs/Personal Journeys

​

• Little Louise

• Mighty Quinn

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