PHACES Foundation of Canada (our Canadian counterpart)
Hemangioma Investigator Group
Pediatric Dermatology Research Alliance
NOVA (National Organization of Vascular Anomalies)
The Vascular Birthmarks Foundation
Managing and keeping track of all the appointments, procedures, medications and other vital information can be overwhelming. We highly recommend getting a binder and documenting the various aspect of your child's medical care. Below are a list of forms from Children's Wisconsin Hospital that they were kind in letting us share with all our families.