top of page
RESOURCES

Associations
-
PHACES Foundation of Canada (our Canadian counterpart)
http://www.phacesfoundation.ca/
-
Hemangioma Investigator Group
http://hemangiomaeducation.org/
-
Pediatric Dermatology Research Alliance
http://pedraresearch.org/
-
NOVA (National Organization of Vascular Anomalies)
www.novanews.org
-
The Vascular Birthmarks Foundation
http://www.birthmark.org
Forms
Managing and keeping track of all the appointments, procedures, medications and other vital information can be overwhelming. We highly recommend getting a binder and documenting the various aspect of your child's medical care. Below are a list of forms from Children's Wisconsin Hospital that they were kind in letting us share with all our families.
Blogs/Personal Journeys
bottom of page