Photovoice Project

Photovoice Project F&Q

 

Click here for a downloadable PDF 

What is PhotoVoice?

You are invited to participate in a PHACE Photovoice Project.

 

The goal of the project is to use photos and stories to learn more about the experiences of individuals affected by PHACE Syndrome.

 

Adults and children with PHACE and parents of children with PHACE are invited to take photos that represent what it is like to live with or care for someone with PHACE Syndrome. Parents to participate on their own, children to participate on their own, or parents and children to both participate. 

 

If you and/or your child choose to participate, you will be invited to take photos for 30 days of what it is like to live with or be affected by PHACE Syndrome. You will upload these photos to a secure website and provide a short description of why you took each photo. 

 

With your permission, the photos collected for this study will be displayed on the PSC website and social media pages.

 

At the end of the project, you and/or your child will be invited to participate in a short 30-minute interview about your experience taking photos and about the photos you took. 

 

If you would like to participate, click here to sign the consent form and sign-up to participate. The deadline to sign-up is Monday, May 24, 2021. All participants will be invited to attend a virtual information session via Zoom on May 27, 2021 - 8:00 pm EDT.

What is Photovoice?

 

Photovoice is a collective storytelling process in which people use photographs to describe their environment and experiences and to express their thoughts about them. The goal of this project is to use photos to learn more about the experiences of individuals affected by PHACE Syndrome.

 

If you choose to participate, you and/or your child will take photos that represent what it is like to live with or care for someone with PHACE Syndrome. What you take photos of is entirely up to you! Your photos might answer these questions:

 

  • What is it like to live with or care for someone with PHACE?

  • What do I want to tell other people about PHACE?

  • What do I wish my or my child’s doctors knew about living with PHACE?

  • How does PHACE affect me or my child at places like home, school, or work?

  • What are my hopes for my or my child’s future?

 

With your permission, the photos collected for this study will be displayed on the PSC website and social media pages.

 

Here are a few examples of Photovoice projects like ours:

 

 

Stay Tuned!

You will be receiving an e-mail soon with more information and a link to sign-up for the project. All participants will be invited to attend a virtual information session via Zoom on May 27 at 8:00 pm eastern time.

 

This project was approved by the Ohio University Institutional Review Board [20-X-43]

 

Photovoice - Kaiser Permanente Community Health Initiatives

 

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