top of page

You are not alone.

Connect with other families and adults.

What is PHACE Syndrome?

Read the orgin of PHACE and how it is diagnosised.

Enroll in the PHACE syndrome registry.

Read about the PHACE and LUMBAR research.

2025 Race for PHACE
September 13-28, 2025

Race for PHACE 1200x (1000 x 600 px) (1).png

PHACE Syndrome Community is a proud member of:

bottom of page