top of page
AWARENSS WEEK
2023 PHACE Syndrome Awareness Week
March 19-26, 2023
​
Research Discussion
with Dr. Ilona Frieden
Join the Zoom meeting on Wednesday, March 22nd, at 8:00 pm eastern time to hear about the current research for PHACE syndrome.
Show Your PHACE Frame
​
​
​
​
​
​
​
​
​
Our signature PHACE syndrome awareness week, customized frame is back for 2023!
​
Receive your 2023 digital frame and share with your family and friends, post on social media and help the PSC celebrate awareness week.
To get your frame....email two pictures of the person with PHACE syndrome to the PSC, and receive your digital frame by March 19!
​
View the completed frames at ShowYourPHACE.com
bottom of page