SHOW YOUR PHACE
2021 PHACE Syndrome Awareness Week
March 21-28, 2021
Visit www.ShowYourPHACE.com for PHACE Awareness Week events.
Show Your PHACE Poster
There were 135 posters requested for 2021 PHACE Awareness week.
2021 PHACE Syndrome Awareness T-shirt
Congratulations to Emelie, age 9 from Stockholm, Sweden, the designer of the 2021 PHACE Syndrome Awareness T-shirt.
Read her story...
I was diagnosed with PHACE early after my birth when they discovered an abnormality in one of the blood vessels to the brain the doctors did a MRI at 3 months of age. The leaky vessel puts pressure to the nerve that controls the eye lid that is affected. This also affects the pupil to have a different size. The eye lid was partly closed from birth and they were afraid I would lose the sight on that eye. I don’t know if this also affects the eye to have a slightly different color from the other. The odds to have one blue and one green eye with PHACE on top is really rare. Gradually the lid become better and better and I don’t have any problems from that except that it is irritated. Apart from that I can easily get migraine.
When my sister was born 2.5 years later, she had a hemangioma with the shape of a heart on her stomach. She also had a different pupil size and was also examined for any abnormalities. However, they could not see any other symptoms.
I came up with the idea to this picture from my mother that suggested that I could draw a Unicorn because she thinks I draw so beautiful unicorns. We have a dog that I love very much so therefore I draw a pawn on the cape on the unicorn. I want it to be a super hero. I love to draw. I like to draw people; it is usually girls since it’s too difficult to draw boys.
Love,
Emelie
Show Your PHACE Awareness Week on Your Social Media
1. Add a frame to your Facebook Profile
How to add a frame to your profile picture
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Hover the mouse over your existing profile picture.
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Click the Update Profile Picture button.
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Select Add Frame.
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Search PHACE (there are three to pick from)
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Click on the frame to see what it will look like on your profile picture.
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Click Use as Profile Picture.
2. Replace the Facebook Cover with the PSC Facebook Cover
3. Replace your profile with the PHACE Syndrome logo to your Facebook or Instagram profile.
Click here to receive the logos.