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2023 PHACE Syndrome Awareness Week


 March 19-26, 2023

Visit for the awareness week events


Research Discussion

with Dr. Ilona Frieden

Join the Zoom meeting on Wednesday, March 22nd, at 8:00 pm eastern time to hear about the current research for PHACE syndrome. 


Click here to register for the meeting.

Show Your PHACE Frame











Our signature PHACE syndrome awareness week, customized frame is back for 2023!

Receive your 2023 digital frame and share with your family and friends, post on social media and help the PSC celebrate awareness week. 


To get your two pictures of the person with PHACE syndrome to the PSC, and receive your digital frame by March 19!

View the completed frames at

SYP - 2023 - base poster.jpg
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