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The PHACE Syndrome Community is a United States 501(c)(3) non-profit dedicated to serving those affected with PHACE and their surrounding family, friends, and community. The organization prospers through the generosity of the community. We encourage all to participate and make whatever time or resource contribution that is possible so you can make a difference for people living with PHACE Syndrome.


The mission of the PHACE Syndrome Community is:​

  •  Raise awareness of PHACE Syndrome.

  •  Build community for all affected.

  •  Support research about PHACE Syndrome. 

  •  Be a key source of medical information and latest advancements.  


PSC's core values include:

  •  Being supportive of one another.

  •  Making responsible contributions.

  •  Working collaboratively and inclusively.

  •  Listening to each other.

  •  Having passion for the cause.

  •  Acting as good stewards.

PSC is a proud member of: ​

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