Be a supporter of the PHACE Syndrome Community!
Your donation allows families and individuals with PHACE syndrome to receive the information and support they need.
Whether you make a one-time or monthly donation, you help the PHACE Syndrome Community build on the last 25 years of research, education and awareness. The PSC supports families with PHACE by providing support to the PHACE Syndrome registry, holding a biennial family conference, hosting social media support groups, and providing updated information to families with a new diagnosis, and those who continue to seek medical answers.
Take the Birthday Pledge
Our families wish for finding a cause and cure!
Help us raise funds to create awareness, move research forward, and help our special kids live great lives with a monthly BIRTHDAY PLEDGE for 12 months.
How Does a Birthday Pledge Work?
If the PHACE child is 10 years old, make a $10 dollar donation per month for 12 months. Of course you can make a larger donation and we welcome those. The donation is made in honor of the child (or adult affected with PHACE). Remember that the PHACE Syndrome Community is still a small community and the more the community supports our group, the more resources will be available to care for the children via awareness and research.
Fundraising will also support our many programs, including upcoming conference, which will take a minimum of $20,000 to organize.