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PHACE Syndrome Community, Inc.


PO Box 300

Willow Grove, PA 19090  USA

Call: 1 (678) 744-3971

Contact Us

Thank you for visiting our website, and wanting to contact PHACE. Click here to submit a question to the PHACE medical advisory board (MAB) or to find out more information about PHACE and the PHACE Syndrome Community.

Join PHACE Syndrome Community

By doing so, you'll receive increased access to our organization, updates with all the latest information, and become a part of our overall mission.


Our goal is to be as helpful to you or your child as possible. Our Board of Directors is a working board, comprised of parents with a child affected by PHACE (or LUMBAR) Syndrome. Click here to join!

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