The 11th annual Race for PHACE is on the calendar.
Join other families and host an event in your hometown.
September 7-15, 2024
You can pick the day that works for you!
Sign up to be captain a team, and attend a captains meeting on
May 28, 2024 @8:00 pm eastern.
Click on the video, and meet Ryan from Chicago, the organizer in his city.
Mission of the PSC
The PHACE Syndrome Community aims to:
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Build Community
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Raise Awareness
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Disseminate Medical Information and Advancements
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Support Research
SUPPORT THE CHILDREN
A PHACE syndrome diagnosis can be challenging.
If you or your child received a PHACE syndrome diagnosis, please consider connecting with the community through the PHACE Syndrome Community organization.
The PHACE Syndrome Community supports research.
Learn more about PHACE syndrome research and the PHACE syndrome registry at Stanford
PHACE Syndrome Community is a proud member of:
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