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What is PHACE syndrome?

PHACE Syndrome is the uncommon association between large infantile hemangiomas, usually of the face, and birth defects of the brain, heart, eyes, skin and/or arteries. It is an acronym that stands for the medical names of the parts of the body it often impacts:

 

  • P – Posterior fossa abnormalities and other structural brain abnormalities

  • H – Hemangioma(s) of the cervical facial region

  • A – Arterial cerebrovascular anomalies

  • C – Cardiac defects, aortic coarctation and other aortic abnormalities

  • E – Eye anomalies

Additionally, new discoveries lead doctors to believe LUMBAR Syndrome is also  related.

The PHACE Syndrome Community aims to:

  • Build Community

  • Raise Awareness

  • Disseminate Medical Information and Advancements

  • Support Research

 

You support is so important and allows the PSC to help many.

Be one of our supporters by making a donation.

A PHACE syndrome diagnosis can be challenging.

 

If you or your child received a PHACE syndrome diagnosis, please consider connecting with the community through our organization.

 

Learn more here.

The PSC hosts a National Conference every other year. 

 The conference is another way to learn more about PHACES, meet the Medical Advisory Board and other families.  

Learn more about the one-day meeting and to how to register.

Join the PHACE Registry

PSC, Inc is a proud member of: 

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