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Join the PHACE Syndrome Community


By doing so, you'll receive access to our organization, updates with all the latest information, and you will become a part of our overall mission.


Our goal is to be as helpful to you or your child as possible. Our Board of Directors is a working board to support affected adults and parents with a child affected by PHACE (or LUMBAR) Syndrome. 

Please fill out the form below. 

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