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Race for PHACE 

Chicagoland

 

Dupage County Forest Preserve Herrick Lake, Wheaton, IL

September 15, 2024

The Race for PHACE, an annual walk/run was formed in Pittsburgh, PA in 2013, by a group of parents who wanted to raise money to support the PHACE Syndrome Community. (PSC).

 

Now in the 11th year, the PSC is thrilled to have an event in the Chicago area for the first time! 

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This event, in the Chicago area, is being organized by Ryan Perry, an Eagle Scout candidate.

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About Ryan...

 

I am a life scout of Troop 95 in Downers Grove, IL. I am a sophomore at Downers Grove North High School.

 

I am currently working on my Eagle project. For my project, I am organizing the first ever Race for PHACE in the Chicagoland area.

 

My brother Connor was diagnosed with PHACE Syndrome shortly after birth, and ever since, the PHACE Syndrome Community has been integral in supporting ours, and many other families affected by such a rare syndrome. 

 

I have seen the rarity of the syndrome and struggles with diagnoses, treatment, and others understanding of it. Because of this I want to help raise awareness for PHACE syndrome and the PHACE Syndrome Community with my project.

 

I hope you sign up for the Chicagoland race and support such a small community that is funded largely on donations.

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Please contact me if you have any questions! 

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Sincerely, 

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Ryan 

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Email-Perryryan08@gmail.com

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Meet Ryan

About the Event

 

What is a Race for PHACE?

The race for PHACE is a run or walk organized to raise awareness for the PHACE Syndrome Community, the funds raised are used to support research, and help families with a PHACE syndrome diagnosis. The organization is the only patient support organization in the world supporting families and individuals with PHACE syndrome and supporting research. 

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What events are available to participate in the Chicagoland Race for PHACE?

There is either a 5K run or a 1 mile walk.

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Are there restrictions to the 5K run?

Anyone with dogs are asked to participate in the 1 mile walk. Individuals pushing a stroller are asked to start at the back of the heat.

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Is there a rain date?
The run/walk will still take place in the event of light or moderate rain. If the race has to be cancelled for any unfavorable weather you will receive an email notification by 6:30AM, September 15th.

 

The race will not be rescheduled. Your registration fees will not be refunded and will be considered a donation to the PHACE Syndrome Community.

About Race for PHACE

In Person Event Location and Time

 

When is the Race for PHACE held?

September 15, 2024 

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Where is the event held?

DuPage County Forest Preserve Herrick Lake, Wheaton, IL

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What time does the event begin?

Check in will begin at 7:30 AM at Herrick Lake in the West Shelter.
1 mile walking loop will begin at 8:15 AM.

5k run will follow beginning at 8:30 AM.

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Please note: There will be no location for gear check for valuables at the in person event.

 

Please do not leave valuables in your car.

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All in person participants will receive a giveaway bag at check-in. Please factor in enough time if you would like to take the race giveaway back to your car.

 

Where can I park when attending the event?

Parking is located on the East side of Herrick Rd 0.25 miles south of Butterfield Rd.
 

Overflow parking is a short walk to the West Shelter where check-in will occur. You can access the overflow lot on the South side of Butterfield Rd about 2 Miles West of Naperville Rd.

Event

Event Registration Information

 

Is there a limit to the number of registrants?

There is a limit of 150 in person registered runners. If we reach that cap feel free to register for a virtual race and complete it anytime that is convenient for you at home (rather than in person at Herrick Lake) or make a donation.

 

What is the registration fee?

$30.00 pp for adults

$15.00 pp for children 12 and under

Children 4 and under are free to participate. 

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How can I register? 

Register and pay using this link

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Can I register my entire family to participate in the Race for PHACE?

Yes! Using this registration form, you can register your entire family.

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How do I determine if I want to run the 5K or walk the 1 mile?

When checking in the day of the race you can choose a 5k run or a 1 mile leisure walk around the lake.

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Is there a rain date?

The event will be not be rescheduled if canceled due to rain. The registration fee will not be returned, as this is a donation to the PHACE Syndrome Community. In the event of cancellation due to poor weather conditions, an email will be sent to the person who registered for the event. Notice of cancellation will be made on the morning of September 15th, and a notice will be posted on this webpage as well. 

Registration

PHACE Syndrome Community Sponsor Information and General Donations

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Consider becoming a sponsor and supporting the PHACE Syndrome Community; use the registration form to become a sponsor

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Platinum level $250

Gold level $100

Silver level $50

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Click here to make your general donation to the PHACE Syndrome Community. 

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Your sponsorship or general donation will be used to support the mission of the PHACE Syndrome Community.

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Does your company want to become a sponsor?

Contact Moureen at mwenik@phacesyndromecommunity.org to learn more about company sponsorship and matching gifts for the Race for PHACE

Sponsorship

Share Your Event on Social Media!

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Share and post your event.

Use #RaceforPHACE to share the event on social media

 

Email pictures and video to raceforphace@phacesyndromecommunity.org

 

Questions about the PSC?

Contact Moureen at mwenik@phacesyndromecommunity.org

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