What is PHACE syndrome?
PHACE Syndrome is the uncommon association between large infantile hemangiomas, usually of the face, and birth defects of the brain, heart, eyes, skin and/or arteries. It is an acronym that stands for the medical names of the parts of the body it often impacts:
P – Posterior fossa abnormalities and other structural brain abnormalities
H – Hemangioma(s) of the cervical facial region
A – Arterial cerebrovascular anomalies
C – Cardiac defects, aortic coarctation and other aortic abnormalities
E – Eye anomalies
Additionally, new discoveries lead doctors to believe LUMBAR Syndrome is also related.
The PHACE Syndrome Community aims to:
Disseminate Medical Information and Advancements
You support is so important and allows the PSC to help many.
Be one of our supporters by making a donation.
PHACE Syndrome can be challenging.
If you or your child received a PHACE syndrome diagnosis, please consider connecting with the community through our organization.
You can join conversations in our online forum, or connect with another family at our virtual meet-ups and conferences.
Join the PSC on August 20, 2022 for a one-day virtual conference.
The conference is another way to learn more about PHACES, meet the Medical Advisory Board and other families.
Learn more about the one-day meeting and to how to register.
SUPPORT THE CHILDREN