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What is PHACE Syndrome?

PHACE syndrome is a disorder characterized by large infantile hemangiomas of the face, scalp and neck associated with developmental defects of the brain, blood vessels, eyes, heart, and chest wall. Each letter of the name PHACE represents a different area of potential symptoms.

Join our community

By doing so, you'll become part of an organization who supports families and individuals with PHACE syndrome.

You will receive online newsletters and updates from our organization about the PSC, research and other pertinent information. 


 Click here to join!

Upcoming Events

11th Annual Race for PHACE

5K run/walk


Join other families and host an event in your hometown. 

September 7-15, 2024

Learn more about the Race for PHACE.

Sign up to be captain a team, and attend a captains meeting on 

May 28, 2024 @8:00 pm eastern. 

Click on the video, and meet Ryan from Chicago, the organizer in his city. 

PHACE Syndrome Community is a proud member of: 
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