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Incredibly Smart and Resilient
Hi there, Hayley, Hannah’s mom here. Nearly three years ago, receiving Hannah’s diagnosis felt overwhelming and scary. But now? Life is oh so sweet—with a side of sassy. It’s a part of our family’s story, but it doesn’t define Hannah or us. We’re great. We’ve built a strong medical team around her—one we truly trust and believe in. The best advice we received was not to wrap her in bubble wrap, but to let her live her life. And she does—fearlessly. She’ll let us know when she

PHACE Syndrome Community
Mar 313 min read
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