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Plan to join us for the
2027 National Family Conference
June 25-26, 2027
Westin Chicago Lombard
The PHACE Syndrome Community hosts meetings for individuals and families to learn more about the medical complexity of PHACE and LUMBAR syndromes, and to ask questions to the community of physicians familiar with PHACE and LUMBAR.
Every other year, the PHACE Syndrome Community hosts an in-person conference, allowing individuals to meet face to face. The meeting of this magnitude means so much to those who have never met another person with PHACE syndrome, particularly children. We are so excited to once again be able to come together with other PHACE Syndrome community members for a weekend of learning, connecting, and support!
"IT'S WHERE I GET TO SEE OTHER KIDS JUST LIKE ME!"- Mira, Age 10
"THE CONFERENCE IS WHERE THE MAGIC HAPPENS"- PHACE Parent
Conference Registration
What's Included?
Pricing Information
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Conference attendance for up to 4 family members (2 adults, and 2 children)
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Breakfast, Lunch, and snacks on both conference days
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A PSC Swag Bag
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Childcare for all child attendees during conference session at our amazing Kid Zone!
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Special event
Early Registration
$300 January 1 - February 28
Regular Registration
$365 March 1 - May 31
Late Registration
$400 -June 1 - June 20
Why Attend?
Wondering what the National Family Conference is all about? Erin Butera, long-time member of the PHACE Syndrome Community, shared her past conference experiences with us and why she thinks everyone should be at the 2027 conference. You can watch her video below or find it on our PSC YouTube Channel.
We know that a lot of factors go into the decision to attend our family conference, and the PSC is here to answer any questions you may have.
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