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The Race for PHACE, an annual walk/run was formed in Pittsburgh, PA in 2013, by a group of parents who wanted to raise money to support the PHACE Syndrome Community. (PSC).
The PSC is thrilled to have the Perry family be the host family for the Chicagoland area.
Ryan Perry, organized an event in 2024 as part of his Eagle Scout project, which he achieved in Spring of 2025! Since that time, he has been dedicated to hosting an annual Race for PHACE event! We hope you will join him, and support his efforts.
About the Event
What is a Race for PHACE?
The race for PHACE is a run or walk organized to raise awareness for the PHACE Syndrome Community, the funds raised are used to support research, and help families who receive a PHACE syndrome diagnosis. The organization is the only patient support organization in the world supporting families and individuals with PHACE syndrome.
What event is being held at the Chicagoland Race for PHACE?
The event will be held at Greene Valley Forest Preserve, and will be held on a crushed limestone, 1 mile loop.
Are there restrictions to the 1 mile fun run/walk?
All dogs must be leashed, and leash must be under 10 feet.
Is there a rain date?
The run/walk will still take place in the event of light or moderate rain. If the race has to be cancelled for any unfavorable weather you will receive an email notification by 6:30AM, September 6th.
The race will not be rescheduled. Your registration fees will not be refunded and will be considered a donation to the PHACE Syndrome Community.
In Person Event Location and Time
When is the Race for PHACE held?
Sunday, September 6, 2026
Where is the event held?
The event will be held at the Greene Valley Forest Preserve near the Thunderbird Youth Group Campground. Take 79th St, and turn South on Thunderbird Rd. There will be a parking lot right by the 1 mile run/walk loop.
What time does the event begin?
Check in will begin at 8:30 AM
1 mile run/walk will begin at 9:00 AM.
Event Registration Information
What is the registration fee?
$30.00 pp for adults
$15.00 pp for children 12 and under
Children 4 and under are free to participate.
How can I register?
Register and pay using this link
Can I register my entire family to participate in the Race for PHACE?
Yes! Using this registration form, you can register your entire family.
Is there a rain date?
The event will be not be rescheduled if canceled due to rain. The registration fee will not be returned, as this is a donation to the PHACE Syndrome Community. In the event of cancellation due to poor weather conditions, an email will be sent to the person who registered for the event. Notice of cancellation will be made on the morning of September 6th, and a notice will be posted on this webpage as well.
PHACE Syndrome Community Sponsor Information and General Donations
Consider becoming a sponsor and supporting the PHACE Syndrome Community; use the registration form to become a sponsor
Platinum level $250
Gold level $100
Silver level $50
Your sponsorship or general donation will be used to support the mission of the PHACE Syndrome Community.
Does your company want to become a sponsor?
Contact Moureen at mwenik@phacesyndromecommunity.org to learn more about company sponsorship and matching gifts for the Race for PHACE
Share Your Event on Social Media!
Share and post your event.
Use #RaceforPHACE to share the event on social media
Email pictures and video to raceforphace@phacesyndromecommunity.org
Questions about the PSC?
Contact Moureen at mwenik@phacesyndromecommunity.org