Our daughter was diagnosed with PHACE (P, H, A) at one month old in March, 2020. When she was born she had slight bruising on her face - our pediatrician said that could happen but everything looked good and there was no worry. Over the next few weeks the bruise grew into redness on the left side of her face and her left eye began to swell. We thought maybe she had a port wine birthmark, but our pediatrician didn’t think that’s what she had. After her three week appointment,

Story by Claire's mom, Amy Hello everyone! I’m Claire’s mom, Amy. I  had a regular pregnancy, Claire was a full term baby.  When she was...

By Whitney Pacheco, PHACE Syndrome Community Board of Director The PSC’s National Conference last June was where I shared my family’s...