An Overview of the Two-Day Meeting
Thursday, June 19:
Getting into Boston early? Staying at the Sheraton Boston?
Join other families for some relaxing pool time at the hotel pool from 7:00 - 9:00 pm.
Friday, June 20:
8:00 am Conference check-in begins
8:00 am - 9:00am Continental breakfast
8:30 am New attendee orientation
9:00 am General Session welcome message
9:45 am Session
10:30 am Breakout session
12:00 noon Lunch
1:00 -2:30 pm Sessions
2:30 Break
2:45 -3:30 pm Sessions
3:30-3:45 pm Meeting Wrap-up
3:45 - 4:00 pm Pick-up children from KidsZone
4:00 - 4:45 pm Dinner
5:00 pm Duck Boat Tour
Saturday, June 21:
8:30am Continental breakfast
9:00 am General Session
9:45 am Session
10:30 am Breakout session
12:00 noon Lunch
1:00 -2:30 pm Sessions
2:30 Break
2:45 -4:00 pm Sessions
4:00 pm Meeting ends
Dinner on your own
Medical Speakers
Dr. Laura Lehman
Neurologist
Boston Children's Hospital
Attending at the Department of Neurology, Outpatient Medical Director of the Stroke and Cerebrovascular Center
Harvard Medical School
Associate Professor of Neurology
Specialties
Arterial Dissection, Arterial Ischemic Stroke, Cerebral Arteriopathies, Cerebral Venous Thrombosis, Hemorrhagic Stroke, Moyamoya Disease, Neonatal Stroke, Neurocritical Care, PHACE Syndrome, Seizures, Stroke, Vasculitis, and Vein of Galen
Dr. Marilyn G. Liang
Pediatric Dermatologist
Boston Children's Hospital
Co-Director, Vascular Anomalies Center, Attending Physician, Dermatology Program, John B. Mulliken Chair in Vascular Anomalies
Harvard Medical School
Associate Professor of Dermatology
Specialties
Vascular Malformations, Sturge-Weber Syndrome, Tuberous Sclerosis Complex
Dr. Denise Metry
Academic Pediatric Dermatologist
Practiced in Houston, TX for 20+ Years
Current Leadership Positions
Member of the PHACE Syndrome Community Board of Directors, Founding Member of the Hemangioma Investigator Group, Member of Leadership for the Society of Pediatric Dermatology and the Pediatric Dermatology Research Alliance
Career Highlights
Organized the first PHACE Syndrome Research and Family Conference in 2008, lead an expert consensus to establish diagnostic criteria for LUMBAR Syndrome
Dr. Dawn Siegel
Pediatric Dermatologist and Clinical Professor
Stanford University & Medicine
Professor in Dermatology & Pediatrics at Stanford University, Director of the Stanford Children's Health PHACE Multidisciplinary Clinic, Director of Pediatric Dermatology Research for the Stanford Skin Innovation and Interventional Research Group, Director of the Siegal Lab
Founder of the PHACE International Clinical Registry and Genetic Repository
Member of the PSC Medical Advisory Board
Community Speakers
Ann Buneo
President of the PHACE Syndrome Community Board of Directors
Moureen Wenik
Community Program Manager of the PHACE Syndrome Community
Whitney Pacheco
Chair of the PHACE Syndrome Community Board of Directors Conference Committee