An Overview of the Two-Day Meeting
Thursday, June 19:
Getting into Boston early? Staying at the Sheraton Boston?
Join other families for some relaxing pool time at the hotel pool from 7:00 - 9:00 pm.
Friday, June 20:
Conference check-in, introductions, all-day presentations and discussions.
The day includes breakfast, lunch and snacks.
Duck Boat Tour
Saturday, June 21:
Presentations, and more networking with adults and families.
The day includes breakfast, lunch and snacks (dinner is on your own).
Sunday, June 22:
A casual event for anyone staying overnight Saturday, details to follow.
A full meeting agenda will be available soon!
Medical Speakers
Dr. Laura Lehman
Neurologist
Boston Children's Hospital
Attending at the Department of Neurology, Outpatient Medical Director of the Stroke and Cerebrovascular Center
Harvard Medical School
Associate Professor of Neurology
Specialties
Arterial Dissection, Arterial Ischemic Stroke, Cerebral Arteriopathies, Cerebral Venous Thrombosis, Hemorrhagic Stroke, Moyamoya Disease, Neonatal Stroke, Neurocritical Care, PHACE Syndrome, Seizures, Stroke, Vasculitis, and Vein of Galen
Dr. Marilyn G. Liang
Pediatric Dermatologist
Boston Children's Hospital
Co-Director, Vascular Anomalies Center, Attending Physician, Dermatology Program, John B. Mulliken Chair in Vascular Anomalies
Harvard Medical School
Associate Professor of Dermatology
Specialties
Vascular Malformations, Sturge-Weber Syndrome, Tuberous Sclerosis Complex
Dr. Denise Metry
Academic Pediatric Dermatologist
Practiced in Houston, TX for 20+ Years
Current Leadership Positions
Member of the PHACE Syndrome Community Board of Directors, Founding Member of the Hemangioma Investigator Group, Member of Leadership for the Society of Pediatric Dermatology and the Pediatric Dermatology Research Alliance
Career Highlights
Organized the first PHACE Syndrome Research and Family Conference in 2008, lead an expert consensus to establish diagnostic criteria for LUMBAR Syndrome
Dr. Dawn Siegel
Pediatric Dermatologist and Clinical Professor
Stanford University & Medicine
Professor in Dermatology & Pediatrics at Stanford University, Director of the Stanford Children's Health PHACE Multidisciplinary Clinic, Director of Pediatric Dermatology Research for the Stanford Skin Innovation and Interventional Research Group, Director of the Siegal Lab
Founder of the PHACE International Clinical Registry and Genetic Repository
Member of the PSC Medical Advisory Board
Community Speakers
Ann Buneo
President of the PHACE Syndrome Community Board of Directors
Moureen Wenik
Community Program Manager of the PHACE Syndrome Community
Whitney Pacheco
Chair of the PHACE Syndrome Community Board of Directors Conference Committee