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2025 National Conference Information

Schedule & Speakers

An Overview of the Two-Day Meeting

Thursday, June 19:

Getting into Boston early? Staying at the Sheraton Boston?

Join other families for some relaxing pool time at the hotel pool from 7:00 - 9:00 pm.


Friday, June 20:
  • 8:00 am Conference check-in begins

  • 8:00 am - 9:00am Continental breakfast

  • 8:30 am New attendee orientation

  • 9:00 am General Session welcome message

  • 9:45 am Session

  • 10:30 am Breakout session

  • 12:00 noon Lunch

  • 1:00 -2:30 pm Sessions

  • 2:30 Break

  • 2:45 -3:30 pm Sessions

  • 3:30-3:45 pm Meeting Wrap-up

  • 3:45 - 4:00 pm Pick-up children from KidsZone

  • 4:00 - 4:45 pm Dinner

  • 5:00 pm Duck Boat Tour


Saturday, June 21:

  • 8:30am Continental breakfast

  • 9:00 am General Session

  • 9:45 am Session

  • 10:30 am Breakout session

  • 12:00 noon Lunch

  • 1:00 -2:30 pm Sessions

  • 2:30 Break

  • 2:45 -4:00 pm Sessions

  • 4:00 pm Meeting ends

  • Dinner on your own



Medical Speakers

Dr. Laura Lehman

Neurologist


Boston Children's Hospital

Attending at the Department of Neurology, Outpatient Medical Director of the Stroke and Cerebrovascular Center


Harvard Medical School

Associate Professor of Neurology


Specialties

Arterial Dissection, Arterial Ischemic Stroke, Cerebral Arteriopathies, Cerebral Venous Thrombosis, Hemorrhagic Stroke, Moyamoya Disease, Neonatal Stroke, Neurocritical Care, PHACE Syndrome, Seizures, Stroke, Vasculitis, and Vein of Galen




Dr. Marilyn G. Liang

Pediatric Dermatologist


Boston Children's Hospital

Co-Director, Vascular Anomalies Center, Attending Physician, Dermatology Program, John B. Mulliken Chair in Vascular Anomalies


Harvard Medical School

Associate Professor of Dermatology


Specialties

Vascular Malformations, Sturge-Weber Syndrome, Tuberous Sclerosis Complex





Dr. Denise Metry

Academic Pediatric Dermatologist

Practiced in Houston, TX for 20+ Years


Current Leadership Positions

Member of the PHACE Syndrome Community Board of Directors, Founding Member of the Hemangioma Investigator Group, Member of Leadership for the Society of Pediatric Dermatology and the Pediatric Dermatology Research Alliance


Career Highlights

Organized the first PHACE Syndrome Research and Family Conference in 2008, lead an expert consensus to establish diagnostic criteria for LUMBAR Syndrome





Dr. Dawn Siegel

Pediatric Dermatologist and Clinical Professor


Stanford University & Medicine

Professor in Dermatology & Pediatrics at Stanford University, Director of the Stanford Children's Health PHACE Multidisciplinary Clinic, Director of Pediatric Dermatology Research for the Stanford Skin Innovation and Interventional Research Group, Director of the Siegal Lab


Founder of the PHACE International Clinical Registry and Genetic Repository


Member of the PSC Medical Advisory Board




Community Speakers

Ann Buneo

President of the PHACE Syndrome Community Board of Directors


Moureen Wenik

Community Program Manager of the PHACE Syndrome Community


Whitney Pacheco

Chair of the PHACE Syndrome Community Board of Directors Conference Committee

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