Connect and Learn at the 2018 PHACE Family Conference
June 29-July 1, 2018
Join our community for the PHACE Syndrome Family Conference, where you and your child can connect with other PHACE families and learn from the leading doctors in the field. This year's conference will be held in Atlanta, Georgia at the DoubleTree Hotel from Friday, June 29 through Sunday, July 1. This bi-annual family conference is the most anticipated event for PSC members!
When you register for the 2018 conference, you gain access to unsurpassed networking opportunities with families affected by all areas of PHACE Syndrome from across the nation.
Your $200 registration for a family of four includes:
Access to the world's leading PHACE physicians
Networking with PHACE families
Three lunches including Sunday picnic
Fabulous dinner at the Georgia Aquarium
Family Fun Day and picnic
Children's programming during conference sessions
Please fill out the form below and submit payment to secure your spots at the 2018 PHACE Syndrome Family conference. The Early Bird registration price is $200 for up to four family members; additional family members are $25 a person.
The conference will be held at the DoubleTree Hilton in downtown Atlanta. We have reserved a block of rooms at a discounted rate for families to stay, making it convenient to attend all conference activities. Please click here to reserve your hotel room now.
A childcare room will be set up at the conference for children up to the age of 12, offering fun games and activities with youth and adult volunteers. All children are welcome. We kindly request parents who choose to bring infants or toddlers into the conference session rooms to be conscious of everyone's ability to hear conference content. Please be prepared to promptly take your little one for a stroll outside the room, should the need arise. More information regarding childcare will become available as conference nears. Please feel free to contact PSC with any immediate questions regarding your registration.
2018 Conference Program
FRIDAY JUNE 29, 2018
Welcome and Opening Remarks
Dr. Leslie Gordon and Dr. Scott Berns
History of PHACE Syndrome
Dr. Beth Drolet
The PHACE Syndrome Community: Mission, Vision, Values and our Common Journey
Diagnostic Guidelines for PHACE Syndrome
Dr. Maria Garzon
The PHACE Registry: Update and Review of Accomplishments
Dr. Dawn Siegel
Hemangioma Treatment Panel
Dr. Denise Adams and Dr. Elena Pope
“Routine” Neuroimaging, Headaches, Aspirin Therapy, and Risk of Stroke in PHACE
Dr. Geoffrey Heyer
Cerebrovascular anomalies in PHACE, Angiograms, and Role of Neurointerventional Radiology and Neurosurgery
Dr. Darren Orbach
Preparing your child for sedated vs unsedated neuroimaging and role of child life
Dr. Matt Hawkins and Emily Ammons
Neuroimaging Panel Q and A
Dr. Geoffrey Heyer, Dr. Darren Orbach, Dr. Matt Hawkins
Roundtable Discussions: All speakers
Wrap up and Adjourn for the day
Dinner and Tour: Georgia Aquarium
SATURDAY JUNE 30, 2018
Team Care for PHACE and MAB Research Update
Dr. Beth Drolet, Dr. Maria Garzon
PHACE Registry and Kids First – Future Directions
Dr. Dawn Siegel
PHACE Syndrome Community: Future Directions and Call to Action
Explaining PHACE to family, friends, and your community
Dr. Leslie Lawley
Taking care of yourself: Strategies to reduce stress and promote resilience
Stephanie Feely and Allison Pellettieri
Motor delays in children with PHACE and the role of physical therapy
Ellie Hoover and Sonika Tataria
Speech-language and feeding disorders in children with PHACE and role of the SLP
Dr. Adriane Baylis
Patient/Parent panel (TBD)
Roundtable discussions: All speakers
Janet Ziffer and Jerri Lauffer
SUNDAY, JULY 1, 2018
Family Fun Day, Centennial Olympic Park
Notes along the side of the form are meant to help with FAQs.
Note: The Basic Family Package ($200) is the minimum option, even if only one adult attends. See above for all that is included in your registration fee.
If you have only one child attending the conference, please proceed to the question on food allergies. If you have more than one child attending, please provide the additional information requested.
Maria C. Garzon, MD
Co-Director, Vascular Anomalies Group
Columbia University Medical Center, NY
Morgan Stanley Children's Hospital
Food Allergy Section
If you would like to help other families attend the conference or help support PSC's mission to put on the conference, you can add a donation to your registration.
* denotes a required field
Want to wear PHACE shirts while at the conference or other events?