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Children at the PHACE Syndrome conference held in the summer of 2014. 

Thank you for your interest in attending the 2016 PHACE Conference.

We are excited that the 2016 PHACE family conference will be held in downtown Indianapolis at the NCAA Hall of Champions Conference Center from June 23-25, 2016!


We're looking forward to being in a wonderful facility in the center of lots of activities for the entire family. The 2016 conference will include:

  • New topics for families with kids of all ages, including sessions focused on how to successfully navigate school-related issues.

  • The latest PHACE research and treatment protocol.

  • Keynote speaker will be a leading researcher from the National Institute of Health's Office of Rare Disease Research (ORDR).


Conference sessions will take place on June 23rd and 24th. On June 25th we will have a Family Fun Day, which will include lunch and activities geared towards our kids.

Registration will open in early January so be on the lookout for information how to register online. The registration fee, through February 29th, will be $150 for a family of 4 (2 adults, 2 kids) + $25 for each additional family member. Starting March 1st, registration will be $175 for a family of 4 + $25 for each additional family member. A complimentary children's program will be available for all kids ages 2 and older. A block of rooms is being held at the downtown Fairfield Inn, which is close walking distance to the conference center.


We anticipate nearly double the attendance of our last conference - we hope you can join us! If you have any questions, please contact Janet Ziffer at

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