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2022 PHACE Syndrome Community Virtual Conference

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Held on August 20, 2022
10:00 a.m. - 6:00 p.m. Eastern standard time

Online via Zoom
Zoom link was sent to all attendees via the email used to register for event. 

We are thrilled to have hosted the 2022 National Conference as a virtual platform, and to have 49 families join us for the one-day virtual event. Below you will find the meeting schedule, the speaker bios, our meeting sponsors.

Access all the recorded presentations from the conference here. 

Conference Agenda

Meeting Agenda
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*Session will be recorded

Tips to make the one-day virtual conference a success!

  • Each medical session will be 30 minutes in length, with 15 minutes dedicated to speaker presentation, followed with 15 minutes of questions and answers. The speakers want your questions, but please hold off until their presentation is over. 

  • Please feel free to ask questions, but be mindful that questions specifically about your child may not be able to be answered during the meeting. 

  • Mute your computer during the speaker presentation and while you are not speaking. It makes it much easier to hear those who are speaking. 

  • Keep on your camera! Everyone is thrilled to see each other, and want live version of you. 

  • Each session will be recorded; links to the meeting will be made available a week after the meeting. 

  • The PSC created a virtual background if you are are interested in using as your background for the day.  Download it here. 

Conference Speakers

The PHACE Syndrome Community is grateful for the speakers who are joining this conference.   

Dr. Lisa Arkin         

Dr. Lisa Arkin
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Conference Sponsors

The PHACE Syndrome Community gives thanks to the following individuals for sponsoring this conference. 

Platinum Sponsor


Adriane Baylis

Ann Buneo

Paul and Erin Butera

Brittany Graber

Erin and Michael Kotyk

Dianne Murray

Steven Russakoff

Jill Salas

Gold Sponsor


Christina Jones

Desiree John

Heather Ranck

Silver Sponsor


Jeannie Fuglesten Biniek

Kimberlea Chabot

April Erpelding 

Michelle Grehan

Elizabeth Kaval 

Diana LaMarca

Gwendolyn Savory

Britta Scheffer 

Kim Spencer

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