Resources/Physicians | phace-syndrome-comm

RESOURCES

Vascular Anomalies Programs and Physicians affiliated with the PHACE Syndrome Community Medical Advisory Board

Children's Hospital of Wisconsin - Birthmarks & Vascular Anomalies Center
Location: Milwaukee, WI

Website: http://www.chw.org/medical-care/birthmarks-and-vascular-anomalies-center/

Physician on the PHACE Syndrome Community Medical Advisory Board:

Beth Drolet, MD, Chair of the Department of Dermatology at the University of Wisconsin School of Medicine and Public Health
Dawn Siegel, MD, Department of Dermatology

Boston Children’s Hospital - Vascular Anomalies Center
Location: Boston, Massachusetts

Website: http://www.childrenshospital.org/centers-and-services/vascular-anomalies-center-program

Physicians on the PHACE Syndrome Community Medical Advisory Board:

Denise Adams, MD, Co-Director of the Vascular Anomalies Center (VAC) and Member of faculty at Harvard Medical School
Darren Orbach, MD, PhD, Co-Director, Cerebrovascular Surgery and Interventions Center, Division Chief, Interventional & Neurointerventional Radiology, Boston Children’s Hospital/Harvard Medical School

University of California San Francisco: Birthmarks & Vascular Anomalies Center and Benioff Children’s Hospital - Pediatric Brain Center

Location: San Francisco, CA

Website: https://www.ucsfhealth.org/clinics/birthmarks-and-vascular-anomalies-center and https://www.ucsfbenioffchildrens.org/clinics/pediatric_brain_center/

Physicians on the PHACE Syndrome Community Medical Advisory Board:

Ilona J. Frieden, MD, Professor of Dermatology and Pediatrics, University of California San Francisco
Christine Fox, MD, Pediatric Stroke Neurologist, Board Certified in both Vascular Neurology and Neurology, with added qualifications in Child Neurology
Heather Fullerton, MD, Chief of Child Neurology at UCSF's Department of Neurology, and director of Pediatric Brain Center at UCSF Benioff Children’s Hospital
Christopher P. Hess, MD, PhD, Associate Professor & Associate Chair, Radiology & Biomedical Imaging, University of California San Francisco

Columbia University Medical Center – Vascular Anomalies Clinic

Location: New York, NY

Website: http://dermatology.columbia.edu/clinical/pediatric_dermatology.html

Physician on the PHACE Syndrome Community Medical Advisory Board:

Maria Garzon, MD, Professor of Dermatology and Pediatrics, Columbia University Medical Center

The Hospital for Sick Children / University of Toronto
Location: Toronto, Canada

Website: http://www.sickkids.ca/Dermatology/What-we-do/index.html#Vascular%20Tumour%20Service

Physician on the PHACE Syndrome Community Medical Advisory Board:

Elena Pope, MD, MSc, FRCPC, Dept of Paediatric Dermatology, The Hospital for Sick Children, University of Toronto

Other Vascular Anomalies Programs and Physicians

University of Wisconsin's Department of Dermatology

Location: Madison, WI

Website: https://dermatology.wisc.edu/

Physician: Dr. Beth Drolet

Children’s Healthcare of Atlanta – Vascular Anomalies Clinic

Location: Atlanta, GA

Website: https://www.choa.org/medical-services/surgery/vascular-anomalies-clinic

Riley Hospital for Children at IU Health – Vascular Anomalies Program

Location: Indianapolis, IN

Website: https://www.rileychildrens.org/departments/vascular-anomalies-program

Physician: Anita Haggstrom, MD

Texas Children's Hospital

Location: Houston, TX

Website: http://www.texaschildrens.org/Locate/Departments-and-Services/Dermatology/Research/

https://www.texaschildrens.org/find-a-doctor/denise-w-metry-md

Physician: Denise Metry, MD

Cincinnatti Childrens Hospital and Medical Center

Location: Cincinnati, OH

Website: https://www.cincinnatichildrens.org/service/h/hemangioma

Associations

PHACES Foundation of Canada (our Canadian counterpart)
http://www.phacesfoundation.ca/
Hemangioma Investigator Group
http://hemangiomaeducation.org/
Pediatric Dermatology Research Alliance
http://pedraresearch.org/
NOVA (National Organization of Vascular Anomalies)
www.novanews.org
The Vascular Birthmarks Foundation
http://www.birthmark.org

Forms

Managing and keeping track of all the appointments, procedures, medications and other vital information can be overwhelming. We highly recommend getting a binder and documenting the various aspect of your child's medical care. Below are a list of forms from Children's Wisconsin Hospital that they were kind in letting us share with all our families.