In short, PHACE is clearly a global syndrome. Below are some statistics generated by an analysis of the official registry. See the dot map representations further down.
Number of US States with PHACE Diagnosis
2015: 27 States
2017: 44 States
(63% increase from 2015)
Mid-West diagnosis are limited
Number of Countries with PHACE Diagnosis
2015: 13 Countries
2017: 22 Countries
(69% increase from 2015)
Registered PHACE Syndrome Community Members
2015: 207 known cases
2017: 321 known cases
(55% increase from 2017)
Also note: this and other research is only possible thanks to the families that take a few minutes to go through the official PHACE Syndrome registration process. Please be sure to join the community and join the PHACE Registry if you haven't done so already. Thank you!
A presentation of this data is location here.
*No personal data was disclosed for this analysis.
Where in the World is PHACE?
Note: There's incomplete location data for Canada for 2017, which has 10 registered cases.