Ella was diagnosed with PHACE when she was three weeks old. She was on Propranolol for over four years and we celebrate that she was recently weaned from all medications. Her parents are thankful for the doctors at Dell Children's Medical Center in Austin, Texas who have managed her care with compassion, collaboration, and wisdom!
PHACE Awareness for 2nd graders in Atlanta, GA.
March 27, 2014
PHACE Syndrome Awareness Week
March 23, 2014
Katie's daughter's journey with PHACE, United Kingdom.