This is Louise. She turned 4 last week. Diagnosed with Dandy-Walker & Tricuspid Atresia at 23 weeks gestation and with PHACE at age 2. She is the apple of her 5 older siblings eye & very much living and thriving here in Ireland. (Jennifer & John)
PHACE Awareness for 2nd graders in Atlanta, GA.
March 27, 2014
PHACE Syndrome Awareness Week
March 23, 2014
Katie's daughter's journey with PHACE, United Kingdom.