UCSF Benioff Children's Hospital

The 2022 Conference will be held virtually. Please check this page for updates and registration information


The 2020 Conference, scheduled for June 19-20, 2020 in San Francisco, CA, was cancelled due to the global pandemic. The PSC knows how important it is for families to gather in person, and will bring the conference to you, through Zoom. We know this is not the same as an in-person event, but we are planning on bringing informative sessions, and breakout sessions to help you connect with one another. 

8:30 am

8:45 am

9:30 am

10:00 am

10:15 am

10:30 am

11:00 am

11:20 am

12:00 pm 

1:00 pm

1:45 pm

2:30  pm

2:45 pm

3:15 pm

3:45 pm

4:45 pm

9:00 am

9:30 am

10:00 am

10:15 am

10:30 am

11:00 am

12:00 pm 

1:00 pm

1:30 pm

2:00  pm

3:00 pm

3:15 pm

4:15 pm

4:30 pm

2018 Conference Program

FRIDAY JUNE 29, 2018


Welcome and Opening Remarks

Janet Ziffer



Dr. Leslie Gordon and Dr. Scott Berns


History of PHACE Syndrome

Dr. Beth Drolet


The PHACE Syndrome Community: Mission, Vision, Values and our Common Journey

Jerri Lauffer




Diagnostic Guidelines for PHACE Syndrome

Dr. Maria Garzon


The PHACE Registry: Update and Review of Accomplishments

Dr. Dawn Siegel


Hemangioma Treatment Panel

Dr. Denise Adams and Dr. Elena Pope


Family Luncheon


“Routine” Neuroimaging, Headaches, Aspirin Therapy, and Risk of Stroke in PHACE

Dr. Geoffrey Heyer


Cerebrovascular anomalies in PHACE, Angiograms, and Role of Neurointerventional Radiology and Neurosurgery

Dr. Darren Orbach




Preparing your child for sedated vs unsedated neuroimaging and role of child life

Dr. Matt Hawkins and Emily Ammons


Neuroimaging Panel Q and A

Dr. Geoffrey Heyer, Dr. Darren Orbach, Dr. Matt Hawkins


Roundtable Discussions: All speakers


Wrap up and Adjourn for the day


Dinner and Tour: Georgia Aquarium




Team Care for PHACE and MAB Research Update

Dr. Beth Drolet, Dr. Maria Garzon


PHACE Registry and Kids First – Future Directions

Dr. Dawn Siegel


PHACE Syndrome Community: Future Directions and Call to Action

Jerri Lauffer




Explaining PHACE to family, friends, and your community

Dr. Leslie Lawley


Taking care of yourself: Strategies to reduce stress and promote resilience

Stephanie Feely and Allison Pellettieri



Family Luncheon


Motor delays in children with PHACE and the role of physical therapy

Ellie Hoover and Sonika Tataria


Speech-language and feeding disorders in children with PHACE and role of the SLP

Dr. Adriane Baylis


Patient/Parent panel (TBD)


Roundtable discussions: All speakers


Final Remarks

Janet Ziffer and Jerri Lauffer




SUNDAY, JULY 1, 2018


Family Fun Day, Centennial Olympic Park

A special thanks to the 2018 Conference sponsors:




Maria C. Garzon, MD

Co-Director, Vascular Anomalies Group

Columbia University Medical Center, NY


Morgan Stanley Children's Hospital