CONFERENCE

UCSF Benioff Children's Hospital

Due to COVID-19, the 2020 Conference scheduled for June 19-20, 2020 in San Francisco, CA, has been cancelled. 

 

More information will be available about the 2022 Conference in the near future. In the meantime, here's an overview and photos from the 2018 conference.

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2018 Conference Program

FRIDAY JUNE 29, 2018

 

Welcome and Opening Remarks

Janet Ziffer

 

Keynote

Dr. Leslie Gordon and Dr. Scott Berns

 

History of PHACE Syndrome

Dr. Beth Drolet

 

The PHACE Syndrome Community: Mission, Vision, Values and our Common Journey

Jerri Lauffer

 

BREAK

 

Diagnostic Guidelines for PHACE Syndrome

Dr. Maria Garzon

 

The PHACE Registry: Update and Review of Accomplishments

Dr. Dawn Siegel

 

Hemangioma Treatment Panel

Dr. Denise Adams and Dr. Elena Pope

 

Family Luncheon

 

“Routine” Neuroimaging, Headaches, Aspirin Therapy, and Risk of Stroke in PHACE

Dr. Geoffrey Heyer

 

Cerebrovascular anomalies in PHACE, Angiograms, and Role of Neurointerventional Radiology and Neurosurgery

Dr. Darren Orbach

 

BREAK

 

Preparing your child for sedated vs unsedated neuroimaging and role of child life

Dr. Matt Hawkins and Emily Ammons

 

Neuroimaging Panel Q and A

Dr. Geoffrey Heyer, Dr. Darren Orbach, Dr. Matt Hawkins

 

Roundtable Discussions: All speakers

 

Wrap up and Adjourn for the day

 

Dinner and Tour: Georgia Aquarium

 

SATURDAY JUNE 30, 2018

 

Team Care for PHACE and MAB Research Update

Dr. Beth Drolet, Dr. Maria Garzon

 

PHACE Registry and Kids First – Future Directions

Dr. Dawn Siegel

 

PHACE Syndrome Community: Future Directions and Call to Action

Jerri Lauffer

 

BREAK

 

Explaining PHACE to family, friends, and your community

Dr. Leslie Lawley

 

Taking care of yourself: Strategies to reduce stress and promote resilience

Stephanie Feely and Allison Pellettieri

 

 

Family Luncheon

 

Motor delays in children with PHACE and the role of physical therapy

Ellie Hoover and Sonika Tataria

 

Speech-language and feeding disorders in children with PHACE and role of the SLP

Dr. Adriane Baylis

 

Patient/Parent panel (TBD)

BREAK

Roundtable discussions: All speakers

 

Final Remarks

Janet Ziffer and Jerri Lauffer

 

Adjourn

 

SUNDAY, JULY 1, 2018

 

Family Fun Day, Centennial Olympic Park

A special thanks to the 2018 Conference sponsors:

GOLD:

SILVER: 

SILVER: 

Maria C. Garzon, MD

Co-Director, Vascular Anomalies Group

Columbia University Medical Center, NY

NY-Presbyterian,

Morgan Stanley Children's Hospital

BRONZE: 

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